HD awareness week 2012

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This week is Huntington’s disease awareness week. As someone who has been hugely effected by this horrid disease, I feel it is only right that I try and spread a little awareness through my blog. For those of you who are not aware, my father has Huntington’s disease, my Nanny had huntington’s disease before she passed away and I have a 50:50 chance of inheriting the disease.

Huntington’s disease, which is often called HD, is an hereditary disorder of the central nervous system. It used to be known as Huntington’s Chorea or HC. Huntington’s disease usually develops in adulthood and can cause a very wide range of symptoms. The disease affects both men and women and is hereditary. An effected person has 50:50 chance of passing it on to their children.

A person with HD will lose their memory, lose their faculties, lose the ability to communicate and eventually need round the clock care like my father.

The Huntington’s disease association is a charity which provides much needed support and information to suffers of HD, their families and their carers. It is a fantastic charity who have provided my father, my family and I a great deal of support over the years. If you feel you would like to donate a small amount of money to a worthwhile cause, it would be greatly appreciated. Although, this post is not to ask for money but to spread awareness.

If you would care to take the time, please take a look at the Huntington’s disease association’s website to find out more about HD and the wonderful work that The HDA do.

Further information about HD can also be found here found here http://hda.org.uk/download/fact-sheets/HD-About-The-HDA.pdf

Many thanks

Bouche x x x

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HD Awareness week

Huntington’s awareness week

From the 13th – 19th June 2011, it is the National Awareness week for Huntington’s disease. Across the country there will be many fundraisers and awareness raising events.

On Saturday, I will be attending the annual summer party that it is held at my Dad’s care home. Birling house in Kent always hold a fantastic garden party, with live music and entertainment for the children. It is a wonderful opportunity for families to meet up and spend time with their loved ones and to catch up with other families dealing with HD. The summer garden party is always during HD awareness week.

I often find it difficult to visit Dad, but I always make sure I go regularly as he looks forward to my visits so much. I always look forward to the annual Birling house garden party. This is mainly because my Dad enjoys them so much and it allows me to catch up with other families with relatives at Birling house. I guess it makes me feel less isolated.

HD awareness week isn’t necessarily to raise much needed funds for the HDA but to do what it says on the tin, and raise awareness for an illness that many people have not heard of.

If you can spare ten minutes of your day today, please click on the below link. I don’t ask for funds for the HDA but to read about the illness, people’s stories and the amazing work that the HDA do.

http://www.hda.org.uk/

Thank you

Bouche x x x

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