This week is Huntington’s disease awareness week. As someone who has been hugely effected by this horrid disease, I feel it is only right that I try and spread a little awareness through my blog. For those of you who are not aware, my father has Huntington’s disease, my Nanny had huntington’s disease before she passed away and I have a 50:50 chance of inheriting the disease.
Huntington’s disease, which is often called HD, is an hereditary disorder of the central nervous system. It used to be known as Huntington’s Chorea or HC. Huntington’s disease usually develops in adulthood and can cause a very wide range of symptoms. The disease affects both men and women and is hereditary. An effected person has 50:50 chance of passing it on to their children.
A person with HD will lose their memory, lose their faculties, lose the ability to communicate and eventually need round the clock care like my father.
The Huntington’s disease association is a charity which provides much needed support and information to suffers of HD, their families and their carers. It is a fantastic charity who have provided my father, my family and I a great deal of support over the years. If you feel you would like to donate a small amount of money to a worthwhile cause, it would be greatly appreciated. Although, this post is not to ask for money but to spread awareness.
If you would care to take the time, please take a look at the Huntington’s disease association’s website to find out more about HD and the wonderful work that The HDA do.
Further information about HD can also be found here found here http://hda.org.uk/download/fact-sheets/HD-About-The-HDA.pdf
Bouche x x x